I was scared Scott would have a seizure on the plane he was so excited to be going on a plane for the first time as excitement, tiredness or distress often triggered a seizure. I needn't have worried as he loved every minute of his plane ride. I hated it and he held my hand all the way.
He was the star of the show gyrating on stage as Elvis, laughed more than I have ever seen him when his Granddad got bitten by a mosquito. The memories of our time spent there are so precious and dear to me.
The love I have for my precious son is unending and my dearest hope is that no other family should ever have to endure the loss of their loved one due to Epilepsy.
Please donate to stop this happening ever again.
Scott loved life, laughed more than anyone I know, I can still hear him, feel him and want everyone to know what an amazing man he was.
Thank you for reading x